As many of you are wondering, recently Tanner had a routine MRI to follow his progress. Although it was not exactly what we had hoped for, we are thankful for every day with Tanner. The doctors informed us that almost all of the necrosis except for a small nodule remains (the hyperbaric treatments as well as the avastin seem to be working!!!). However, what was thought to be one tumor now appears to be two that are very close to one another almost looking like a dumbell. They are located in the fourth ventrical and seem to be pressing against the brain stem. The doctors are amazed that Tanner is walking, breathing, eating as well as he is own his own. He truly is my little hero. They feel the chemo is slowing down the tumor growth, but not stopping them. Tanner will continue the chemo cocktail for another six to eight weeks and hopefully by then there will be an opening to start on a new clinical trial where he would be taking a new drug called Deforolimus.
Some days seem harder than others for Tanner, although his spirits remain high, his body has a hard time keeping up. His balance is very unsteady, his little legs just aren’t as strong as they used to be.
Thanks to Aunt Candie and Uncle Bernie who made it possible for all of us to get away for a few days, we made a trip to Saluda SC to stay at the Lake House on Lake Murray. Tanner had an incredible time with his cousins Justin, Allison & Brandon playing games, riding on the boat and just being plain lazy!!!! It was nice to get away from all the doctor appointments for a while.
This entry was posted on Friday, October 24th, 2008 at 1:12 pm.