As many of you may know Tanner and I recently returned home after he received 2 months of hyperbaric treatments in Gainesville and West Palm Beach. Shortly thereafter, we returned to Gainesville to have his routine MRI with plans to begin a new therapy drug called “Avastin” to reduce the necrosis and carefully taper him of the decaron steroids before they became too damaging.
To our surprise we received the most devastating news we thought we would never hear again. Not only was the necrosis still present, but the tumor had returned in the original tumor site. After Oncology, Neurosurgery and Radiology teams met it was determined that the tumor is inoperable…..
After carefully weighing out our choices it was determined that we would begin Tanner on a mixed infusion of the Avastin as well as a chemo called Irinotecan with hopes of slowing down tumor growth which seems to be moving quickly.
Quality of life has been very important to us and the choice of this infusion allows us to bring Tanner home with us and return every two weeks to Oncology for the treatments.
Tanner received his first infusion on Wednesday and seems to be handling everything very well. They will be stopping the steroids in one week to begin a cortisol medication with the guidance of the Endocrinology and Oncology group. The decadron steroids unfortunately developed a large fatty layer along the spine which is compressing on it and making it difficult for Tanner to walk for long periods at a time.
As always Tanner’s spirits remain high filling every day with his beautiful smile and laughter. He may have some additional physical challenges now, but his mind and soul remains the most incredible thing I have ever seen. Everyday is truly a blessing with him and I know he will continue to fight this battle.
We love each and everyone of you who are a part of Tanner’s life journey and appreciate all of your support.
The Page Family
This entry was posted on Saturday, August 16th, 2008 at 10:49 am.